World Schizophrenia Awareness Day: May 24th

By Michael Dolan. Medically Reviewed by Allison Young, MD: Reviewed: November 5, 2019 8-10 minutes

A Way to Help People Understand Schizophrenia and Psychosis

Think of schizophrenia as a brain disease, say advocates.

Linda Stalters, founder and CEO of SARDAA (Schizophrenia and Related Disorders Alliance of America), was also part of a previous group that created Schizophrenia Awareness Week (SAW). “A week like this is meant to change how schizophrenia and psychosis are understood,” Stalters says. "Currently, people think it’s an elective way to behave and think, but it’s actually a brain disease, like Alzheimer’s, Parkinson’s, or autism. The neurotransmitters, the physical structure, and function of the brain change.”

There’s Historic Meaning Behind the May 24 Date

When Stalters and her former colleagues originally created the awareness week in May, they did so around the symbolism of May 24. “That’s the date it was believed that Dr. (Philippe) Pinel released the patients in France who were imprisoned and chained to the walls in the 1700s,” says Stalters. Pinel is considered a pioneer who helped initiate humane treatment of people with mental illness.

Why It Can Take Tragedy to Get Treated for Schizophrenia

The irony is not lost on her, as there are still a large number of people who either don’t receive treatment or receive substandard treatment for their schizophrenia in the criminal justice system.

“Unfortunately, it’s usually tragedy that brings people to treatment,” Stalters says. “But that tragedy may take people into the criminal justice system, which is no place for treatment. Or to facilities that house more people 200,000 people that are homeless. Because of their delusions and hallucinations, patients don’t want to go into shelters. And because of their symptoms, their behaviors could be out of the ordinary." Getting Access to Proper Schizophrenia Treatment Is Not Easy

Now with SARDAA, Stalters believes this lack of understanding has a dramatic impact on the number of people who are able to get treatment for schizophrenia. “We don’t allow people who have Alzhiemer’s — who are confused and potentially having hallucinations — to drive around disoriented and lost, or to walk around naked and shoeless in the snow. When that happens, we put out a Silver Alert. Someone with schizophrenia or psychosis doesn’t have any of that, because they have the right to refuse treatment, even though they, like the person with Alzheimer’s, does not realize that they are ill. So there’s a perception that people with schizophrenia choose to be on the street or in prison.”

Untreated Schizophrenia Is Common, and Reason for Concern

According to Stalters, over 50 percent of the people who have schizophrenia do not receive treatment for it. She says that many people who have schizophrenia, also have a condition called anosognosia — the inability to recognize that you have an illness. “If you don’t have an illness, you are not likely to seek treatment,” she says. “Early intervention is profoundly important. The National Institute of Mental Health’s RAISE study (Recovery After an Initial Schizophrenia Episode) has shown that if a person is identified early on, and parents can get them involved in a comprehensive treatment program as soon as psychosis is experienced, if they start medication right away, it curtails the length and intensity of the psychotic event. We have treatments available for other people with developmental disabilities, such as autism. They ask the person, ‘Do you want to go to school or to work?’ They give them occupational therapy and a support system to help them get through and do the best they can. But even when parents do know, and they beg for help, they can’t get it, because insurances don’t provide what people need.”

Stalters also believes that the educational opportunities that SAW brings can help to dispel other incredibly damaging assumptions about the disease. “Schizophrenia is not one illness,” she says. “It’s like calling cancer one illness. Depending on which neurotransmitters are affected in a person, it can determine how t